Keeping Up With The Joneses
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Seuss I am a 35 year old living with Cystic Fibrosis. I have had my ups and downs, but try my best to live a normal life. For now I am just living each day to the fullest, trying to juggle it all. What is Cystic Fibrosis? Confessions of a Cyster. Monday, August 25, 2014. Tuesday, May 21, 2013.
Enjoying life with our daughter Sophie who has Cystic Fibrosis and was also born with a Tracheo-Oesophageal Fistula and Oesophageal Atresia. Monday, 1 June 2015. A little while ago I mentioned that Sophie had started ice skating lessons and was doing rather well. She was picked up by a coach who wanted to coach her privately and as Sophie loves skating we allowed this to happen.
People who think Ben is cool. Get blog updates by Email! Tap, tap, tap. Order a Breathe Easy Mask here! Get diapers sent to your home! Your first order of diapers. Friday, November 11, 2011. Tap, tap, tap. We also visited the pumpkin patch with my cousin and my mom when she came to visit.
Monday, June 20, 2016. Colorado giveth, and Colorado taketh away. I suppose I will start with the giving. The whole crew has been up here for two months now, and we love it. The people, the weather, the fun things to do, the job, it is all excellent. When family visits Lix makes everybody exercise.
Quarterly CF Clinic and Culture Results - October 2017. We made the nearly two hour drive up to Hopkins for her quarterly CF clinic visit. We left the house at 8 am and returned home by. The nurse also measures her height, takes her blood pressure, measures her oxygen levels, and her temperature. After PFTs, the clinic nurse usually finds a room where we meet with the pharmacist who goes over each medicati.
New Year, New NEWS! Tuesday, January 3, 2012. New Year, New NEWS! After almost a year away from the blogging world, I am ready to post again. Comfortable and at peace with our decision. What decision you ask? Monday, January 24,.
I am trying my best to be a good mommy, wife, and teacher. This is my outlet to talk about the trials and tribulations of having MS, and raising a child with CF. One face in 30,000 with CF. One of the many faces of Cystic Fibrosis. Friday, November 7, 2014. Needless to say things have changed a lot since my last post but we are all doing well. Here are my girls, how fast they grow. Zoey, ready for gymnastics. Saturday, July 28, 2012. I am a little scared abou.
Saturday, March 21, 2015. She has also stated many times that she likes cystic fibrosis and she likes who she is. She says cystic fibrosis is part of her. I think mostly she likes cartoons. Learning to change the filter on her vest machine.
What is Cystic Fibrosis? Tuesday, January 13, 2015. The End of the Road. Felix is now almost five years old and Victor is two and a half. I feel that we are at a very different point in our lives now and our family has evolved to suit that change. Cystic fibrosis will always continue to throw us curveballs but I feel more confident and at peace with it. This blog will remain here, but will no longer be active. com and if I do start an.
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Keeping Up With The Joneses. 1 Corinthians 1614 Do everything in love. Friday, August 14, 2015. Last weekend Sydney played in the first of two pre-season tournaments. First up was the Nike Cup. The girls played this tournament last year and let me tell you the improvement from last year to this year was pretty impressive. Last year we basically got slaughtered as it was the teams first time playing 11 v 11. Plus we were pooled with some of the best teams in the state. It was rough! Beat her to the ball!CONTENT
This web page has the following in the homepage, "1 Corinthians 1614 Do everything in love." We viewed that the web page also stated " Friday, August 14, 2015." It also said " Last weekend Sydney played in the first of two pre-season tournaments. First up was the Nike Cup. The girls played this tournament last year and let me tell you the improvement from last year to this year was pretty impressive. Last year we basically got slaughtered as it was the teams first time playing 11 v 11. Plus we were pooled with some of the best teams in the state. It was rough! Beat her to the ball!."VIEW SUBSEQUENT WEB SITES
This will allow us to share information just like the Pony Express only faster, cleaner, safer, cooler, and not quite as smelly. Post updates, photos, links, and stories! Sunday, March 16, 2014. Matt - annual Jones Clan NCAA brackets? Thursday, November 14, 2013. Christmas wish list time! Please comment with some items that you would love to receive this year! Happy gift hunting to everyone! .
Too But it is what it is. Even with the extra 20 lbs. 1 Wherever we go must have water. A pool or a spray park at the very least. We must be able to cool off somehow. I never pee in the pool.
If your plans include moving to Columbia, Missouri, or relocating to a new home within Columbia, Missouri, you owe it to yourself to consult with a trusted REALTOR at The Jones Company Real Estate, LLC. Our goal is to make sure your sale or purchase of a home in Columbia, Missouri, proceeds smoothly, on time, and with outstanding attention to all the necessary details, including superb communication between our agents and you, the clients.
As a land broker you are always asked. Who do you suggest I use to get the property surveyed? The Jones Corp is the only recommendation I will give. Their prompt estimates, reasonable rates, and professionalism of their staff far exceeds many companies we have dealt with in the past. Toby Stay Land Broker Landguys. Jones Surveying and Engineering Corporation offers professional land surveying, civil engineering, construction inspection, testing, and construction management services.
Monday, December 27, 2010. Thursday, February 26, 2009. Friday, February 20, 2009. Tuesday, February 3, 2009. The photos are great fun - glad the login worked keep posting! Winnebago.